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    Inclusive education for pupils with

    ASD: challenges and opportunities

    Neil Humphrey and Wendy Symes

    School of Education, University of Manchester

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    Welcome, thanks and housekeeping

    Welcome to everyone! We hope you enjoy the seminar Thanks to:

    ESRC for funding the research

    Our various speakers for giving up their time to contribute today

    The schools and pupils for their participation in the project Wendy and her various junior researchers for helping to collect

    and analyze the project data

    All of the presentations in this seminar series, the papers

    we have written from the project, and various other

    resources are housed at: www.asdinclusion.info

    Please visit the site and bookmark it as it will be updated

    regularly as we continue our dissemination

    http://www.asdinclusion.info/http://www.asdinclusion.info/
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    Overview of today

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    Session overview Life in school: a rationale for this project

    What do we mean by inclusion? The challenge of inclusion for pupils with ASD

    Project design

    Key findings

    Peer group

    Peer interaction patterns

    Bullying, social support and popularity

    Staff

    Teacher attitudes, experience and knowledge

    Teaching assistants role, deployment and teacher relationships

    Pupils with ASD

    Perspectives on life in school

    The classroom

    To what extent are pupils with ASD included in lessons?

    Key characteristics of effective inclusion for pupils with ASD

    Where are we now and where are we going?

    This is barely scratching the surface of our dataset in the time we have we are onlyable to give the headlines please check www.asdinclusion.info regularly for updatesas we continue to write up our findings

    http://www.asdinclusion.info/http://www.asdinclusion.info/
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    Life in school

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    Life in school

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    What do we mean by inclusion?

    Not just about where a pupil is educated inclusionis about the quality of their experiences in education

    Some key indicators?

    Presence

    Participation Acceptance

    Achievement

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    The challenge of inclusion for pupils with

    ASD

    Excellence for All Children (DfEE, 1997) resulted in sharp rise

    in numbers of pupils with ASD attending mainstream schoolsin England e.g. 16% increase from 1997-2001(Keen & Ward, 2004)

    This has evened off more recently e.g. less than 1% change from 2004-2010 (DfES, 2004; DCSF,

    2010) Around 70% of pupils with primary need reported as ASD

    receiving provision at School Action Plus or with a Statementof SEN attend a mainstream school (DCSF, 2010) At secondary level:

    Pupils with primary need reported as ASD make up 6.6% of all pupils with

    special educational needs receiving provision at School Action Plus or witha Statement of SEN in secondary mainstream schools in England

    18,170 pupils with primary need reported as ASD receiving provision atSchool Action Plus or with a Statement of SEN in secondary mainstreamschools in England

    Of these, approximately 60% have Statements of SEN (DCSF, 2010)

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    The challenge of inclusion for pupils with

    ASD

    Pupils with an ASD are around 8 times more likely to be permanently

    excluded from school than pupils without SEN (0.27% compared to

    0.04%) (DCSF, 2009; 2010)

    They are most likely to be excluded due to a physical assault against

    another pupil or adult (DCSF, 2010)

    Teachers relationships with pupils with ASD are associated with theamount of problem behaviour they display and their social inclusion

    within the classroom (Robertson, Chamberlain & Kasari, 2003)

    Teachers experience tensions relating to frustration over the

    enduring effects of emotional and behavioural manifestations of ASD

    (Emam & Farrell, 2009) Children with an ASD provide an excellent example of... where

    significant cracks exist in the system, to the detriment of those who

    fall between them (HOCESC, 2006, p.18)

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    The challenge of inclusion for pupils

    with ASD

    There is often an assumption that because of pupil with ASD is

    academically able, he or she should be able to cope in

    mainstream education (Moore, 2007)

    Difficulties in social interaction and communication can

    increase risk of and exposure to bullying and social isolation

    (NAS, 2006) Preference for routine, predictability and low sensory

    stimulation is at odds with the noisy, bustling and often chaotic

    mainstream secondary school environment meaning it can

    be a very stressful place for pupils with an ASD (Carrington &

    Graham, 2001)

    Typical cognitive profile and preferred learning style of pupils

    with an ASD can challenge professional assumptions about

    teaching and learning (Jordan, 2005)

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    Project design

    Funded by the Economic and Social Research Council (ESRC)

    Jan 2008 Dec 2010

    Aim:

    To examine the effectiveness of (and subsequently inform practice in) inclusive

    education for pupils with ASD in mainstream secondary schools

    Objectives:1. To generate knowledge and understanding in relation to the presence, participation,

    acceptance and achievement (inclusion) of pupils with ASD, as compared to pupils

    with other (dyslexia) or no special educational needs (SEN)

    2. To identify the key systemic factors that facilitate or constrain successful inclusion

    of pupils with ASD

    3. To explore, document and share good practice in the inclusion of pupils with ASD4. To inform education theory and debate relate to the special nature of teaching

    strategies and approaches for pupils with SEN (specifically, pupils with ASD)

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    Project design

    (1) Lead in phase recruitment, instrumentation etcetera

    (2) Profiles of inclusion phase causal comparative

    investigation of inclusion profiles of 40 pupils with

    ASD (ASD group), 40 with dyslexia (DYS group),and 40 with no SEN (CON group) across 12 schools

    Matched triad process age, gender, school (plus SEN

    provision for ASD and DYS)

    Data collected on key indicators of inclusion at differentlevels, including

    Individual self-esteem, social support, bullying, attitudes towards

    school

    Peer group social inclusion, peer interaction

    Institutional staff attitudes, knowledge and experience, SENCO ASDaudit, classroom observations

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    Project design (3) Good practice case study phase qualitative case studies of 4 schools, chosen on

    the basis of data from the previous phase Independent nominations from NH and WS cross-checking revealed 100% consistency in top

    four nominations

    Approximately half a term spent in each school; data collection included:

    Interviews with and diaries of pupils with ASD

    Interviews with staff teachers, support staff, SENCO, senior management

    Observations in class and other settings

    Document analysis

    Interviews with parents and carers

    (4) Dissemination phasesharing and discussing our findings

    Conference presentations at international, national and local levels (presentations at

    conferences in Chicago (NASP), Birmingham (BILD), Preston (NAS), Salford (MRC) and

    Stockport (SC) so far Five regional seminars (including this one!)

    Papers for academic and practitioner journals (8 written so far with more to come)

    Articles for user group publications such as Communication (NAS) (1 written so far with more to

    come)

    Website to house study outputs and resources www.asdinclusion.info

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    Key findings peer group Peer interaction patterns how do pupils with ASD in mainstream settings interact

    with their peers?

    Structured observations of pupils in ASD, DYS and CON groups at break and lunch

    over a two day period

    Peer Interaction Observation Schedule adapted from Pellegrini & Bartini (2000) 22

    discrete behaviours exhibited by the focal pupil, and 7 pertaining to the behaviour of

    their peers

    e.g. solitary (engaged), co-operative interaction, locomotor, parallel

    Frequency and duration of behaviours coded

    Duration: participants with ASD spent more time engaged in solitary behaviours, less

    time engaged in co-operative interaction with peers, and more time engaging in

    reactive aggression towards peers than either comparison group.

    Frequency: similar patterns emerged, but additionally participants with ASD engagedin fewer instances of rough/vigorous play, and were subject to more instances of

    social initiation and instrumental verbal aggression by peers than either comparison

    group

    No significant differences emerged between DYS and CON groups

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    Key findings peer group

    Bullying, social support and popularity how dopupils with ASD compare to those with other (DYS)

    or no SEN (CON) on these key indicators of social

    inclusion?

    Bullying My Life in School (Arora & Thompson, 1987) Social Support Social Support Scale for Children

    (Harter, 1985)

    Popularity/rejection Social Inclusion Survey

    (Frederickson & Graham, 1999)

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    Key findings peer group

    Pupils with ASD experienced significantly greaterbullying than either comparison group (no significant

    difference between DYS and CON groups)

    Bullying was approximately 2-3x more frequent in

    ASD group

    0

    0.5

    1

    1.5

    2

    2.5

    3

    ASD DYS CON

    Bullying frequency

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    Key findings peer group

    ASD group experienced significantly loweracceptance and higher rejection in both social and

    work domains than either comparison group (no

    significant difference between DYS and CON groups

    on any scores)

    0

    0.1

    0.2

    0.3

    0.4

    0.5

    0.6

    0.7

    0.8

    Social:acceptance

    Social:rejection

    Work:acceptance

    Work: rejection

    ASD

    DYSCON

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    Key findings peer group

    Pupils with ASD reported receiving significantly lower levels of social

    support than either comparison group. Key differences were foundfor classmates, friends and parents, but not teachers* (no difference

    between DYS and CON on any domain)

    *Parents and teachers are obviously not peers but they are

    included on the SSSC

    2.6

    2.7

    2.8

    2.9

    3

    3.1

    3.2

    3.3

    3.4

    3.5

    3.6

    Parents Classmates Teachers Friends

    ASD

    DYSCON

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    Key findings peer group

    Putting it all together Reciprocal Effects PeerInteraction Model (Humphrey & Symes, in press)

    Pupil with ASD Peer group

    Social cognition

    difficulties

    Lack of awareness

    and understanding of

    ASD

    Poor social and

    communicative skills

    Reduced

    acceptance of

    difference

    Reduced quality and

    frequency of peer

    interaction

    Limited socialnetworks, fewer friends,

    less social support

    Increased bullying

    and social rejection

    Increased

    isolation and

    loneliness

    Reduced motivation for

    social contact, moresolitary behaviour

    Reduced opportunities

    to learn about ASD

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    Key findings - staff

    Teachers attitudes, knowledge and experience Questions adapted from McGregor & Campbell,

    (2001) and the Manchester Inclusion Standard

    (2004)

    53 staff responded

    21 were SENCOs or senior management (SM

    group)

    32 were maths, english or science teachers (STgroup)

    SM and ST both perceived their schools as

    highly inclusive

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    Key findings - staff

    SM more likely than ST to feel they had the skills to teach

    a child with ASD

    SM and ST found displaying inappropriate emotions

    most difficult to cope with

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    Key findings - staffKey benefits for included pupils with ASD:

    Social inclusion e.g. developing social skills, making friends

    Avoiding stigma of attending special school

    Key challenges for included pupils with ASD:

    Social exclusion e.g. bullying, isolation, difficulty making

    friends

    Lack of understanding from peers and staff

    Key benefits for mainstream peers:

    Increased understanding and tolerance

    Experience wider society and develop social skills

    Key challenges for mainstream peers:

    Difficulty accepting why some students are treated differently

    Uncomfortable if confronted with aggressive or inappropriate

    behaviours

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    Key findings - staff

    Explored the use of Teaching Assistants(TAs) to support pupils with ASD

    15 TAs from four schools interviewed

    11 TAs employed by the school, 4 TAsemployed by outside agency specialising

    in supporting pupils with ASD

    Asked questions about deployment,training, relationship with teachers and

    school environment

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    Key findings - staff

    Deployment:Getting to know the child vs. getting to know the subject

    Supporting pupils with ASD

    Helping the pupil stay focused, understand instructions and

    develop organisational skills

    Teacher is ultimately responsible for pupils learning

    Very little work on developing social skills

    Experience & training

    Many TAs had no experience prior to the job

    Amount of training varied between schools and TAs

    TAs felt that generic ASD training was not helpful - wanted

    more specific strategies for supporting pupils with ASD

    Wanted training in how to make pupils independent learners

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    Key findings - staff

    Relationship with teachersFacilitated if TAs frequently worked in the same

    lessons/department

    Teachers over or under relying on knowledge of TAs - what is

    the TAs role?

    School attitudes towards pupils with SEN

    Must be a whole school approach to inclusion of all pupils with

    SEN

    Senior management must be supportive of inclusion

    Factors facilitating or hindering the ability of TAs to effectivelyinclude pupils with ASD

    Access to expertise (including SENCO)

    Good communication at all levels - TAs should be informed

    about anything to do with the pupil they are supportingStaff awareness of ASD - if teachers have a limited

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    Key findings pupils with ASD

    Perspectives on life in school analysis in progress! What is life in school like from the perspective of the

    pupils themselves?

    Related paper - Humphrey & Lewis (2008)

    20 pupils with ASD from 4 schools Interviews and diaries (written, audio, word-

    processed)

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    Key findings pupils with ASDCharacteristics associated

    with ASD

    Special interestsRote memory

    Mentalising difficulties

    Odd behaviour

    Preference for visual learning

    Social naivety

    Inflexible thinking

    Relationships with peersProblems

    Bullying and teasing

    Social isolation

    Solutions

    Peer support

    Friendships

    Negotiating difference

    Desire to stay in mainstream

    Wanting to fit in

    The need for independence

    Issues around disclosure

    Constructing an

    understanding of ASD

    Being different/not normal

    Having a bad brain or mental

    syndrome

    Being odd or a freak

    Acceptance of ASD

    Working with teachers and

    other staff

    Being treated differently vs.

    being treated the same

    Availability of support

    Methods of support

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    Key findings the classroom

    How included in lessons are pupils with ASD?

    Structured observations ofpupils in ASD, DYS and

    CON groups over 5 lessons each

    Observation schedule adapted from the Manchester

    Inclusion Standard (2004) 15 items such as

    The focal pupil is engaged with the task/lesson

    The focal pupil is working independently

    The focal pupil works collaboratively with peers Rated on a scale (1-4) summed to give a total score

    Unstructured observations of 21 pupils with ASD in

    3-5 lessons each

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    Key findings the classroom

    Pupils with ASD were least included in lessons

    Both pupils with ASD and DYS were significantly

    less included than the CON pupils; no significant

    difference between ASD and DYS groups

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    Key findings the classroom

    Pupils with ASD were less likely to work independently, listen to their

    classmates, and get along with their classmates than the DSY or

    CON groups

    Unstructured observations revealed that pupils with a TA were less

    likely to work independently or work with/get along with their

    classmates

    K h i i f ff i i l i

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    Key characteristics of effective inclusion

    for pupils with ASD

    Data from good practice phase common themes

    and patterns across 4 schools

    More detailed examples of practice this afternoon

    from Gareth/Mary!

    Strong inclusive ethos valuing diversity andrespect for all pupils and staff

    SENCO/inclusion manager with high levels of

    expertise and passion in relation to ASD

    Links to specialist schools Sharing of knowledge and expertise

    Training and development

    Dual placement arrangements

    K h t i ti f ff ti i l i

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    Key characteristics of effective inclusion

    for pupils with ASD

    Communication of information about pupil needs

    across the school

    Frequency

    Consistency

    Reach Opportunities for training and staff development

    In-house

    External

    Developing awareness and understanding of peergroup

    Sensitively handled disclosure, circles of friends

    Use of support staff

    K h t i ti f ff ti i l i

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    Key characteristics of effective inclusion

    for pupils with ASD

    Balancing universal, group and individual needs

    What is useful for all learners?

    What is useful for learners with ASD?

    What is useful for Joe Bloggs?

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    Where are we now and where are going? The wider picture developments in SEN policy and provision and what the future might bring

    Implications for effective inclusion of pupils with ASD? Several potentially useful tools and strategies were rolled out during the lifespan of this project

    Inclusion Development Programme (DCSF, 2008) ASD strand

    1. What is the autism spectrum?

    2. Social and emotional understanding

    3. Communication and language

    4. Flexibility of thought and behaviour5. Sensory perception and responses

    6. Know the pupil

    7. Curriculum priorities and inclusive practice

    8. Sources of support

    Achievement for All (DCSF, 2009), especially:

    1. Assessment, tracking and intervention

    2. Parental engagement and confidence

    3. Wider outcomes

    1. Eliminating bullying

    2. Developing positive relationships

    3. Promoting positive behaviour

    Wh d h

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    Where are we now and where are we

    going? Lamb Inquiry (2009) parental engagement and confidence

    A stronger voice for parents Greater focus on childrens needs

    A more accountable system delivering better services

    Development of Achievement for All (see previous slide)

    OFSTED SEN review findings - some headlines (OFSTED, 2010)

    Parents feel that the current system does not help their children to achieve their goals

    Identification of pupil needs is inconsistent

    No single model of provision works better than any other, but having a flexible system and

    knowing about what kind of support is available locally is important

    Additional provision at SAP and for SSEN is often not of good quality

    SEND Green Paper (DfE, 2010) (with White Paper to follow)

    Parental choice

    Changes in funding system transparency and cost-effectiveness

    Prevention of closure of special schools

    Support post-16 transitions

    Improve diagnosis and assessment to facilitate earlier identification

    Wh d h

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    Where are we now and where are we

    going?

    People with ASD are like salt-water fish who are

    forced to live in fresh water. Were fine if you just

    put us into the right environment. When the person

    with ASD and the environment match, the problems

    go away and we even thrive. When they dont

    match, we seem disabled [Young adult with ASD]

    (Baron- Cohen, 2003, p.180).