C O N V E G N O D I S T U D I O « A U T I S M O : I P U N T I F E R M I P E R L A P R O M O Z I O N E D E L L ’ I N T E G R A Z I O N E E D U C A T I V A E S O C I A L E »

3 1 M A G G I O – 1 G I U G N O 2 0 1 3

M . A R I E L C A S C I O

D O T T O R A N D A D I A N T R O P O L O G I A , C A S E W E S T E R N R E S E R V E U N I V E R S I T Y , C L E V E L A N D , O H , U S A

B O R S I S T A D I F U L B R I G H T A . Y . 2 0 1 2 - 2 0 1 3

I Servizi per Autismo negli Stati Uniti

DSM-IV-TR Disturbi Pervasivi Dello Sviluppo

DSM-5 (Maggio 2013)

Disturbi del neurosviluppo

Disturbo autistico

Sindrome di Asperger

Disturbo Pervasivo dello Sviluppo non altrimenti specificato (PDD-NAS)

Sindrome di Rett

Disturbo disintegrativo dell’infanzia

Disturbo dello spettro autistico

3 Livelli di Gravità

La Prevalenza e Classificazione

La Diagnosi

La valutazione medica Childhood Autism Rating Scale (CARS) The Modified Checklist for Autism in Toddlers (M-CHAT) The Social Communication Questionnaire (SCQ) The Autism Diagnostic Observation Schedule (ADOS) The Autism Diagnostic Interview – Revised (ADI-R) Gilliam Autism Rating Scale (GARS) Psychoeducational Profile, 3rd Edition (PEP-III) Parent Interviews for Autism (PIA) Asperger Syndrome Diagnostic Interview (ASDI) Asperger Syndrome Diagnostic Scale (ASDS) Gilliam Asperger’s Disorder Scale (GADS)

La valutazione scolastica Le valutazioni per altri servizi

Le Leggi

Individuals with Disabilities Education Act (IDEA)

Individualized Education Plan (IEP)

Least Restrictive Environment (LRE)

Intervento Precoce

«Auitami A Crescere»

Individualized Family Service Plan (IFSP)

Service Coordinator

Head Start

Persone sullo Spettro a Scuola

Morrier, M.J., C.E. Rice, J. Baio, S.J. Wagner, and J. Nicholas. 2010. Changes in Educational Placements for Children with Autism Spectrum Disorders (ASDs) in a Population-Based Sample in a US Metropolitan Area. Paper Presented at International Meeting for Autism Research, Philadelphia, PA, USA, March 21.

Interventi

NIMH Recommendations

Terapia Compartamentale

Farmaci

DAN!, ARI

CFGF

Supplements

Contro i farmaci

Sensory Integration

“Top 10 Treatments." Chart. Kennedy Krieger Institute. Interactive Autism Network StateStats. Retrieved January 31, 2013. http://dashboard.ianexchange.org/quickstats.aspx?A1=OH, Data current as of January 21, 2013.

Assicurazione Sanitaria

Costi a carico del soggetto all’anno

$756.43 (Shattuck & Parish, 2008)

$3461 – $5671 (IAN 2013)

Assicurazione Sanitaria

Medicaid and Medicare

Medicaid Waivers

Affordable Care Act

“Average Annual Overall Out-of-Pocket Treatment Costs (US $) Per Child by Diagnosis." Chart. Kennedy Krieger Institute. Interactive Autism Network StateStats. Retrieved January 31, 2013. http://dashboard.ianexchange.org/quickstats.aspx?A1=OH, Data current as of January 21, 2013.

Preparazione per la Vita Adulta

Alla età di 16, il PEI deve contenere i programmi per la transizione dalla scuola alla comunità

Bureau of Vocational Rehabilitation

Ohio Department of Developmental Disabilities Service and Support Administrator

Tutore legale

La Vita Adulta

Università

1/3 frequenta università

Centri Diurni

Ohio Department of Developmental Disabilities elenca opzioni

Lavoro: competitivo o supportivo

Supplemental Security Income (SSI)

Mezzi Pubblici – Travel Training

Conclusione

ariel.cascio@case.edu

Bibliografia

Adams, J.B., Edelson, S.M., Grandin, T., Rimland, B., and Johnson, J. (2012). Advice for Parents of Young Autistic Chidlren (2012, Revised) – Part 1. Retrieved January 31, 2013 from http://www.autism.com/index.php/understanding_advice

The Autism Society of Ohio (2013). Home. Retrived January 31, 2013 from http://www.autismohio.org/.

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Butterfly Effects, Inc. (2012). Ohio Autism Insurance. Retrieved January 31, 2013 from http://butterflyeffects.com/services/ohio-autism-insurance

Case Western Reserve University (2013). Eligibility and Coverage – CWRU Student and Dependent Medical Plans. Retrieved January 31, 2013 from http://students.case.edu/medicalplan/student/1213/eligibility.html

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Goodwill Industries International, Inc. (2013).Goodwill Industries International. Retrieved January 31, 2013, from http://www.goodwill.org/

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Interactive Autism Network (2013). Quick StateStats – OH. Retrieved 31 January 2013 from http://dashboard.ianexchange.org/quickstats.aspx?A1=OH

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Bibliografia

Morrier, M.J., C.E. Rice, J. Baio, S.J. Wagner, and J. Nicholas. 2010. Changes in Educational Placements for Children with Autism Spectrum Disorders (ASDs) in a Population-Based Sample in a US Metropolitan Area. Paper Presented at International Meeting for Autism Research, Philadelphia, PA, USA, March 21.

National Institute of Mental Health (2011). A Parent’s Guide to Autism Spectrum Disorder (NIH Publication No. 11-5511). Bethesda, MD: Department of Health and Human Services, National Institutes of Health. http://www.nimh.nih.gov/health/publications/a-parents-guide-to-autism-spectrum-disorder/parent-guide-to-autism.pdf

Obringer, L.A., and Jeffries, M. (2006) "Understanding Health Insurance." HowStuffWorks.com. Retrieved January 31, 2013 from http://tlc.howstuffworks.com/family/health-insurance.htm.

Office of Head Start (2012). About Head Start. Retrieived January 31, 2013 from http://eclkc.ohs.acf.hhs.gov/hslc/hs/about.

Ohio Help Me Grow (2011). HMG FAQs. Retrived January 31, 2013 from http://www.odh.ohio.gov/~/media/HelpMeGrow/ASSETS/Files/Parents%20and%20Caregivers%20Gallery/hmgfaqs.ashx

Ohio Parents’ Guide to Autism Spectrum Disorders (2009). OCALI.

Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012). Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics, 129(6), 1042–1049.

Shattuck, P. T., & Parish, S. L. (2008). Financial burden in families of children with special health care needs: variability among states. Pediatrics, 122(1), 13–18.

Special Learning, Inc. (2011). Cost of ABA Therapy. Retrieved January 31, 2013 from http://www.special-learning.com/article/Cost_of_ABA_Therapy

Undergraduate tuition and fees and room and board rates for full-time students in degree-granting institutions, by percentile of charges and control and level of institution: Selected years, 2000-01 through 2010-11. (2011). Digest of Education Statistics. Retrieved January 31, 2013, from http://nces.ed.gov/programs/digest/d11/tables/dt11_351.asp

Zwyer, David A. (2009). Guardianship in Ohio. Columbus: Ohio Developmental Disabilities Council.